March 2010
1 post
Mar 24th
February 2010
2 posts
New Wheelchair Update
To quickly bring everyone up to date: I needed a new cushion for my chair, and had been having really noticeable issues with my balance & posture since the fall. When I contacted my guy at Custom Mobility (the wheelchair retailer), he recommended that I go for a consult with a physical therapist who specializes in wheelchair evaluations/fittings/etc. I was terrified (physical therapists...
Feb 11th
“After a while you learn the subtle difference between holding a hand and...”
– © 1971 Veronica A. Shoffstall
Feb 8th
1 note
January 2010
1 post
Making Myself Happy
For most of my life I’ve given far too much weight to what the people in my life say about me. Because my own self-image was so uniformly negative, I accepted negative feedback/criticism (which resonated with my internal beliefs) as “truth” much more easily than the positive stuff. But any positive feelings I had about myself necessarily came from external sources, too. ...
Jan 20th
1 note
December 2009
2 posts
2010 Intentions
I generally like to make my yearly intentions at my birthday, but I rarely make those public. Here, then, are the intentions I have for the next calendar year that I don’t mind sharing. Most of these are already in progress. Continue to make my diet healthier. Explore working with a nutritionist who specializes in the particular needs of people with SMA. Purposefully process old,...
Dec 31st
1 note
I think I saw Santa today!
So here’s the scene: wanting to get away from the computer and out of the house, I had agreed to accompany my father on a midday trip to International Plaza (Tampa’s luxury mall) to help him pick out gifts for my mom. I was cold, in pain, stressed out by the crowds, and above all, feeling sadly nostalgic (for reasons that are neither important or relevant). To put it mildly, I was not...
Dec 20th
November 2009
1 post
Open Salon post: How not to educate children about... →
In which I rant about Gimp For A Day “awareness” activities.
Nov 7th
1 note
October 2009
4 posts
#Antidev: Some thoughts on disability "devotees"
[UPDATE] The comments and reactions on this post got weirdly screwed up and separated by Disqus into two threads. The original comments can be viewed using this link. I’ve closed that thread to avoid further confusion; please add any additional thoughts to the bottom of the page found at http://tumblr.com/xkb3pejv1. Sorry for the confusion! Earlier today, @msjennylin posted a tweet that...
Oct 26th
1 note
Oct 11th
Oct 5th
The softest sheets ever →
I’m very picky about the texture of fabrics, both in linens and clothing, and I’ve been on a hunt for a really soft set of sheets ever since my favorite set had an unfortunate run-in with a cheap pen in the dryer 5 years ago. I’ve found some reasonably soft flannel ones that are ok in the winter (all 3 weeks of it); I spent $4 at Big Lots on one really soft but misshapen jersey...
Oct 4th
September 2009
2 posts
Sep 24th
Hello, Tumblr!
After 7 years I have finally shuttered my self-hosted blog… I was finding it increasingly clumsy and disconnected, and simply not worth the bother. I tweet regularly, and I post proper pieces of writing on Open Salon, so what I really needed was a well-connected, social place to post all the thoughts that fall inbetween. And that’s precisely what you’ll find here. So welcome to...
Sep 24th